At one time, this blog was intended to be a business card of sorts, a space to talk about writing and website admin and sell freelance work to people. It didn't really fly and it's sort of reverted to being a personal blog of sorts again, but more work related than my personal blogs used to be.
From Medical Internet Literacy:
I am not aware of any evidence that it's doing any real good for other people and writing about my long, strange healing journey has been all kinds of downside for me. It doesn't make money and I really need more income.
I am highly unlikely to ever prove my ideas via standard scientific and medical channels. I wouldn't really want people to do things out of "faith" in me or because I'm charismatic and likable.
Celine Dion is the celebrity face for the CF community. She likely isn't particularly medically savvy per se but people will be happy to agree with her that I should simply be ignored.
My understanding is her parents let her go into a music career at a young age in part to pay her sister's medical bills. Her public position of being an ally to the CF community may well be a PR position that hides her real feelings about the whole thing.
She is unlikely to say she resented being made to work at such a young age or expected to give up substantial earnings to pay the huge medical bills associated with CF. Any personal objections she may have had are likely to remain a private matter and the CF community is unlikely to ever question her motives, though if they want to get healthier they really should.
On the upside, it took me a LOT of years to learn to write in a fashion that I felt worked and being ignored allowed me to do that with minimal drama. It also means I'm unlikely to be sued by some idiot failing to understand what I've written and DIYing it ANYWAY.
As long as people get medical advice from celebrities rather than scientists and physicians, my work will likely be ignored.
Odds are good that will be for longer than I am likely to live, even if I live to be a hundred.
I wasnt trying to change medicine anyway, just save my life. I did that but have yet to escape poverty.
I need to focus on things I think have some hope of putting money in my pocket and THIS is not it.
As noted in my last post on this site, odds are good Celine Dion has heard of me and dismissed me and my health writing out of hand.
From Medical Internet Literacy:
One of the criticisms I got today about internet literacy was someone saying that big name famous people were promoting a lot of nonsense: Just a sampling of educated people who were pushing this bullshit: Elon Musk (Stanford grad school dropout), Dr Drew (USC MD), Bret Weinstein (UMich PhD), Harvey Risch (Yale).It's been more than a month since my last post to that site. I don't know if it's worth developing further AT ALL.
I am not aware of any evidence that it's doing any real good for other people and writing about my long, strange healing journey has been all kinds of downside for me. It doesn't make money and I really need more income.
I am highly unlikely to ever prove my ideas via standard scientific and medical channels. I wouldn't really want people to do things out of "faith" in me or because I'm charismatic and likable.
Celine Dion is the celebrity face for the CF community. She likely isn't particularly medically savvy per se but people will be happy to agree with her that I should simply be ignored.
My understanding is her parents let her go into a music career at a young age in part to pay her sister's medical bills. Her public position of being an ally to the CF community may well be a PR position that hides her real feelings about the whole thing.
She is unlikely to say she resented being made to work at such a young age or expected to give up substantial earnings to pay the huge medical bills associated with CF. Any personal objections she may have had are likely to remain a private matter and the CF community is unlikely to ever question her motives, though if they want to get healthier they really should.
On the upside, it took me a LOT of years to learn to write in a fashion that I felt worked and being ignored allowed me to do that with minimal drama. It also means I'm unlikely to be sued by some idiot failing to understand what I've written and DIYing it ANYWAY.
As long as people get medical advice from celebrities rather than scientists and physicians, my work will likely be ignored.
Odds are good that will be for longer than I am likely to live, even if I live to be a hundred.
I wasnt trying to change medicine anyway, just save my life. I did that but have yet to escape poverty.
I need to focus on things I think have some hope of putting money in my pocket and THIS is not it.